Mar 23, 2012
Posted by Dale
Over three months ago I (Dale) wrote this on our blog:
“My prayer is that our son will reflect God’s glory. That is a scary prayer when we see a man in the Bible, born blind so as to bring glory to the Lord.”
Yesterday we learned that our son FX, has a syndrome called Williams. FX has struggled since he was conceived. He has struggled to grow, struggled with hernias, colic, eating, constipation, eye sight, heart issues and many other maladies that make most parents cringe. He will also grow up to have some physical side effects of William’s but we also learned about other amazing things about this “disease.”
If he is like most other with William’s he will have many blessings as well. He has gorgeous “starry eyes.” He will treat no one like a stranger but more likely will love everyone he comes in contact with. FX will have a beautiful ear to ear smile. He will be highly verbal relative to his cognitive skills. He will be affectionate.
One of the most amazing things about William’s disease is that FX will probably love music. I have seen video’s of soprano’s with William’s syndrome who can memorize 2,000 arias without reading music! I have seen drummers going off on crazy solos! They actually recommend that you get your kids around as much music as possible. They recommend lesson’s as well. God has wisely put FX in the perfect family. That’s like asking a fish to be around water. He will always be around music. He will always have something to dance to. Our son will reflect God’s glory and that gives us great joy. How fun to take him on tours.
So when people ask how they could pray for us, I answer, pray for us to get sleep and him not to be in pain. I will not ask God to take this syndrome away. God has created my son to be a blessing to the world. Today I was singing to him and he began to make sounds as if he were almost already singing back.
I can’t wait to make this album. I hope FX will be there for a lot of it, unless he’s crying and then he can go home!
PS- Thanks for the comments, although it’s kinda weird for you to say I am selfish but you are entitled to your opinion. This post is not meant to be divisive but to encourage those who are going through struggles. I am not saying I want my son to be in pain. I actually mention that in the post. Please pray for him to be comfortable. But I am also saying he may be uniquely gifted by God to be the man God desires him to be. What one may call a “disease” or “syndrome” others might call it a blessing.
It’s also interesting to think of the idea of how disease can be a “good” thing. My dad came to Jesus through his Parkinson’s disease and while he is no longer with us, I wouldn’t trade his presence for his salvation. Sometimes hard things are good things. I am thankful to God our redeemer for redeeming disease for His glory. Amen.